Behcet's Syndrome

Important
It is possible that the main title of the report Behcet's Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Adamantiades-Behcet's Syndrome
BD
Behcet's Disease
Halushi-Behcet's Syndrome
Oculo-Bucco-Genital Syndrome
Touraine's Aphthosis
Triple Symptom Complex of Behcet

Disorder Subdivisions

None

General Discussion

Behcet's syndrome is a rare multisystem inflammatory disorder characterized by ulcers affecting the mouth and genitals, various skin lesions, and abnormalities affecting the eyes. Symptoms include areas of abnormal skin changes (lesions) of the mouth and genitals that tend to disappear and recur spontaneously. Inflammation of the outer fibrous layers of tissue (tunic) that surround the eyes (posterior uveitis) also affects individuals with Behcet’s syndrome. Additional systems of the body may also be affected including the joints, blood vessels, central nervous system, and/or digestive tract. The exact cause of Behcet’s syndrome is unknown.

Resources

American Behcet's Disease Association
PO Box 19952
Amarillo, TX 79114-9952
USA
Fax: 8066222257
Tel: 8007234238
Email: cfornabaio@behcets.com
Internet: http://www.behcets.com

Vasculitis Foundation
P.O. Box 28660
Kansas City, MO 64188
USA
Tel: 8164368211
Fax: 8164368211
Tel: 8002779474
Email: vf@vasculitisfoundation.org
Internet: http://www.vasculitisfoundation.org

National Association for Visually Handicapped
22 West 21st Street
New York, NY 10010
USA
Tel: 2128893141
Fax: 2127272931
Email: staff@navh.org
Internet: http://www.navh.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
USA
Tel: 4048727100
Fax: 4048720457
Tel: 8005684045
Email: help@arthritis.org
Internet: http://www.arthritis.org

O'Duffy, J. Desmond, M.D.
Mayo Clinic
Division of Rheumatology
200 First Street SW
Rochester, MN 55905

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: 3014954484
Fax: 3017186366
Tel: 8772264267
TDD: 3015652966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov

NIH/National Eye Institute
Building 31 Rm 6A32
31 Center Dr MSC 2510
Bethesda, MD 20892-2510
United States
Tel: 3014965248
Fax: 3014021065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov/

National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda, MD 20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
Email: braininfo@ninds.nih.gov
Internet: http://www.ninds.nih.gov/

Behcet's Organisation Worldwide
PO Box 27
Watchet
Somerset, Intl TA23 0YJ
United Kingdom
Tel: 07713 220303
Email: information@behcetsuk.org
Internet: http://www.behcets.org

Erythema Nodosum Yahoo Support Group

Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/

CNS Vasculitis Foundation
9930 Morningfield
San Antonio, TX 78250-3743
USA
Tel: 2105238234
Email: pamela@cnsvf.org
Internet: http://www.cnsvf.org

Autoimmune Information Network, Inc
PO Box 4121
Brick, NJ 08723
Tel: (732)262-0450
Fax: (732)262-0450
Email: autoimmunehelp@aol.com
Internet: http://www.aininc.org

European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Jeroen Bosch Hospital
Dept. Paediatrics
P.O. Box 90153
Hertogenbosch, 5200 ME's
Netherlands
Tel: +31 73-6992965
Fax: +31 73-6992948
Email: info@esid.org
Internet: http://www.esid.org

AutoImmunity Community

Tel: (919)-55-2-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 4/26/2004
Copyright 1986, 1987, 1988, 1989, 1990, 1992, 1994, 1995, 1997, 1998, 1999, 2000, 2002, 2004 National Organization for Rare Disorders, Inc.

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