Self Help ClearinghouseCeliac Sprue|
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American Celiac Society / Dietary Support Coalition
National. 78 affiliated chapters. Founded 1976. Mutual support and
information for celiac-sprue patients, families and health care
professionals. Buddy system, visitation, phone help system,
newsletter and participation in educational efforts. Also supports
dermatitis herpetiformis, Crohn's disease, lactose intolerance and
other food allergies.
Write: American Celiac Society
P.O. Box 23455 New Orleans, LA 70183
Voice: 504-737-3293 (Annette Bentley)
Website: http://www.americanceliacsociety.org
E-mail: americanceliacsociety@yahoo.com or amerceliacsoc@netscape.net (please dod not send attachments)
Verified: 10/24/2007
Celiac Sprue Association/United States of America, Inc.
National. 100 chapters and 60 resource units. Founded 1969. Provides
educational materials on celiac sprue, dermatitis herpetiformis and
basics for the gluten-free diet for patients, parents of children
with celiac sprue and professionals. Children's camp in August in
Rhode Island. CelKids network. Provides opportunities for support
groups and networking with patients and professionals. Newsletter
and annual conference. Group development guidelines.
Write: Celiac Sprue Association/USA
P.O. Box 31700 Omaha, NE 68131-0700
Voice: 1-877-272-4272 or 402-558-0600 Fax: 402-643-4108
Website: http://www.csaceliacs.org
E-mail: celiacs@csaceliacs.org
Verified: 4/26/2007
Celiac Disease Foundation
National. Founded 1990. Creates awareness and provides services and
support for patients, their families, medical and
healthcare professionals seeking information about celiac
disease/dermatitis herpetiformis. Free information packets. Annual
membership $35.00. Handbook 'Guidelines For a Gluten-Free Lifestyle'
is included with annual membership or sold separately for $10.
Members receive a quarterly newsletter and update notices of
upcoming events. Brochure and quick start diet guide available in
English and Spanish.
Write: Celiac Disease Foundation
13251 Ventura Blvd., Suite 1 Studio City, CA 91604
Voice: 818-990-2354 Fax: 818-990-2379
Website: http://www.celiac.org
E-mail: cdf@celiac.org
Verified: 9/20/2007
Gluten Intolerance Group of North America
National network. 30+ affiliated groups. Founded 1974. Mission is to
increase awareness by providing accurate and up-to-date information,
education and support to persons with gluten intolerance, celiac
disease/dermatitis herpetiformis, their families, health care
professionals and the public. Offers News magazine ($35),
information and referral, conferences, guidance to those starting
groups, group development guidelines and cookbooks.
Write: Gluten Intolerance Group
31214 124th Ave., SE Auburn, WA 98092
Voice: 253-833-6655 Fax: 253-833-6675
Website: http://www.gluten.net
E-mail: info@gluten.net
Verified: 4/25/2007
The above information was "verified" as correct on the date at the end of each entry. Since American
Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for
these organizations can change, it is not possible to keep every entry in American Self-Help Group
Clearinghouse database completely current and accurate. Please check with the organizations listed
for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group
Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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